Searching the web can be challenging. The following links take you to other web resources including organizations that provide medicines, support research, and advocate for patients with specific conditions. Many of these groups also have additional resources, staff, and patient advocates who can also answer questions.
The following list of links provides access to disorder-specific foundations and advocacy groups.
Sarcoidosis Network Foundation (SNF)
The mission of the SNF is to promote education and awareness; support research to find the cure and prevention; and, to improve the quality of life for those affected by Sarcoidosis.
Hemophilia Federation of America (HFA)
HFA serves as a consumer advocate for safe, affordable and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders.
American Autoimmune Related Diseases Association (AARDA)
AARDA is the only national nonprofit health agency dedicated to bringing a national focus to autoimmunity, the major cause of serious chronic diseases. They are dedicated to the eradication of autoimmune diseases and the alleviation of suffering as well as the socioeconomic impact it has on its patients.
National Multiple Sclerosis Society
The National MS Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
National Hemophilia Foundation (NHF)
The NHF is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Jeffrey Modell Foundation (JMF)
The JMF serves as a tireless, compassionate advocate on behalf of patients and families to assure their access to excellent and comprehensive care and to promote public awareness of Primary Immunodeficiency diseases through programs involving scientific and medical communities.
Immune Deficiency Foundation (IDF)
The IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
International Pemphigus and Pemphigoid Foundation (IPPF)
The IPPF's most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.
The Myositis Association (TMA)
The TMA provides support to myositis patients and their families as well as providing connections between the TMA's medical advisory board and the general medical and patient communities.
Myasthenia Gravis Foundation of America (MGFA)
A strong national support group dedicated solely to the fight against Myasthenia Gravis. MGFA serves its patients, their families and their caregivers through a network of chapters, support groups and programs.
GBS | CIDP Foundation International
The GBS | CIDP Foundation's vision is that every person afflicted with GBS, CIDP or its variants has convenient access to early and accurate diagnosis, appropriate and affordable treatments and dependable support services.
Immunology Association Links
- American Autoimmune Related Diseases Association (AARDA)
- Jeffrey Modell Foundation (JMF)
- Immune Deficiency Foundation (IDF)
- International Pemphigus and Pemphigoid Foundation (IPPF)
- The American Association of Immunologists (AAI)
- Clinical Immunology Society (CIS)
- American Academy of Allergy, Asthma and Immunology (AAAAI)
Neurology Association Links
The following list of links provides access to everything from different types of diseases to support groups.
- SFNC - Small Fiber Neuropathy Center
- The Neuropathy Association
- The Foundation for Peripheral Neuropathy
- Hereditary Neuropathy Foundation
- Charcot-Marie-Tooth Association (CMTA)
- Neuropathy Action Foundation (NAF)
- NextStep, CIDP GBS Translational Research Foundation
- The Consortium of Multiple Sclerosis Centers (CMSC)
- Myasthenia Gravis Foundation of America (MGFA)
- GBS | CIDP Foundation International
- National Multiple Sclerosis Society
- Peripheral Nerve Society (PNS)
- American Academy of Neurology (AAN)
- American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)
Nurses Association Links
American Association of Neuroscience Nurses (AANN)
The AANN is committed to the advancement of neuroscience nursing as a specialty through the development and support of nurses to promote excellence in patient care.
International Organization of Multiple Sclerosis Nurses (IOMSN)
The IOMSN is the premier international organization focusing on the needs of nurses involved with MS care, education, research and advocacy.
Immunoglobulin Nursing Society (IgNS)
IgNS is committed to developing and sustaining the advancement of knowledge, education and practice of nursing in the field of Ig therapy.
Infusion Nurses Society (INS)
The INS is committed to bringing innovative new resources and opportunities to a wide range of healthcare professionals who are involved with the specialty practice of infusion therapy.
The following list of links provides access to different areas of scientific research.
National Institute of Allergy and Infectious Diseases (NIAID)
Through outreach, demonstration, and education projects, NIAID supports testing the effectiveness of interventions to promote health and prevent disease in specific populations. NIAID's approach integrates basic science with relevant clinical specialties.
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of NINDS is to reduce the burden of neurological disease - a burden born by every age group, by every segment of society, by people all over the world.
National Organization for Rare Disorders (NORD)
NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research and patient services.